


Longing
This merry-go-round included Onward, Christian Soldiers and Jesus Loves the Little Children in its repertoire. Visions of Narnian animals going forth to battle danced in my head, during the first.
"So teach us to number our days, that we may apply our hearts toward wisdom." Psalms 90:12; 139:13-17.



This week Early Girl lived up to her name, as she pulled into second, behind the cherry tomatoes. Yesterday I found what I thought were sloooowly ripening red tomatoes (when I checked several days ago) had turned golden yellow, and I picked 20 in one day! Eleven red tomatoes were ready on the three other plants, which had yielded a grand total of four or five, so far.
. . . . the drive from here to the hospital is so pretty. I steer clear of the interstate and take Highway 61, known to southeast Missourians as “the old highway,” through a couple of dozen miles of rolling farmland. The trees along Highway 61 are so green this week that Technicolor couldn't begin to capture their intensely saturated hue, . . . . Art, I'm sure, means more to city dwellers who live far from such natural pleasures, and when I return home to the city, mine will mean more to me. At present, though, I'm happy to revel in the world around me as I drive to and from my temporary job as a caregiver. That seems to be all the beauty I need.(Apologies to aggregators and rss feeds, if this repeated. Blogger is not wysiwyg with text wrapping photos.)
(from About Last Night, where arts critic Terry Teachout is blogging about leaving New York to spend some time caring for his aging, ailing mother, in his southeast Missouri hometown.)

My grandmother birthed 19 children (including two sets of twins) in 24.5 years, according to my aunt. The 14 who survived early childhood attended today's reunion, along with many of their children, grandchildren, and great-grandchildren.I am bringing this to the surface from a behind-the-scenes email follow-up to Summer Joy 1, in which I recommended Expecting Adam, by Martha Beck. (Beck is a contributor to Oprah's O magazine.)
Expecting Adam is an entertaining book. Warning: Beck is pro-choice, a lapsed Mormon, and sometimes lets her imagination run away with her. As a married mother of one and a Harvard student, she finds herself carrying a child with Down syndrome. She attends a disturbing class in which abortion for children with disabilities is endorsed, but decides to allow her son to live. Adam brings the Beck family a lot of joy, while radically transforming their perspective on the value of an IQ. Their journey will make you laugh; it will make you cry.
Mitchell Zuckoff's Choosing Naia tells a story along similar lines, but with a more serious tone. It carries additional layers; the child will be bi-racial. The father is black, and doesn't want his daughter to have a double stigma to deal with. It has been awhile since I read this, but I felt for the man in his struggle. If you believe God makes the choice to give a child life, you do not face this particular turmoil. The wife did give birth to the little girl, and the family learned to love her. If I remember correctly, the paternal grandparents were firmly pro-life, and gave the couple moral support. I believe the couple was visiting churches, looking for a good fit, toward the end of the story. (The book is based on a series of articles Zuckoff wrote for the Boston Globe, as he followed the family's journey.)
Michael Berube's Life As We Know It: A Father, A Family, and an Exceptional Child is another account by a pro-choice intellectual. This couple didn't know their son had Down syndrome before he was born. Both parents were professors, and here again, love for child with a disability causes a deep shift in the way his parents view intellectual ability. Berube gets wordy and political. It is fascinating to watch a pro-choice pragmatist trying to argue against aborting children with Down syndrome. I respect this man for loving his son and for his disability advocacy, in spite of his ideology.
I am not recommended these books as uplifting Christian reading, but as a path to insight into the way some families deal with having a child with a disability. They are well-written and interesting. Mourning is changed to joy; what parents greeted with dread turns into a blessing. They are inwardly transformed by their children.
I found the discussions of choice disturbing, but waded through them (1) for the sake of the rest of the story, and (2) because I thought it valuable to understand how people think in these situations. They are a part of the reality in which we find ourselves. (Our local Down syndrome association gets calls from people who are making murder an option when their unborn child is diagnosed with Down syndrome.) I did not understand how these parents could remain pro-choice after having their children. I felt they were blinded by the culture.
For encouragement, try Gene Stallings' Another Season. Stallings is former University of Alabama football coach, and father of Johnny, who has Down syndrome. One of the pediatricians in the group we use attended U. of Alabama, and knows who Johnny is, which makes me feel connected. If I remember correctly, this was a Christian family.
Recommended reading: Changed by a Child: Companion Notes for Parents of a Child with a Disability, by Barbara Gill.
